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  1. #1
    lowrisk is offline Private Member
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    Default Let's all club together to help beat Cystic Fibrosis

    Hey

    Some of you may remember last year, when I was the self appointed fundraising bitch for HodgeyBoy https://www.gpwa.org/forum/lets-all-...ondon+marathon when he ran the London Marathon.

    This time, it is I who is trying to raise cash for a great cause. So here is the story of what I am doing, and why.

    Here is my Just Giving fundraising page, to raise vital cash for the Cystic Fibrosis Trust

    ----------------

    What am I doing?

    On the 17th of May 2014, at The Ship, Falsgrave, Scarborough, I shall be having all of my hair shaved off so I am just about bald, also I shall be having my legs waxed too.

    Why am I doing it?

    At the end of 2012, going into the beginning of 2013, a friend of mine told me their sister, Zoe Phillips, at a young age of just 23, was seriously ill, and sadly didn't have long left to live. I was naturally very shocked, and she told me Zoe had suffered with a condition since birth, known as "Cystic Fibrosis", something I had never heard of. I mentioned Cystic fibrosis to many friends, and awareness of it seemed to be very low. It seemed it wasn't just me who was unaware.

    First of all, here is the very sad story of Zoe Phillips and her devastating journey as a sufferer of Cystic Fibrosis.

    Although I didn't know Zoe personally, I am good friends with her sister Gemma, the following account is written by Gemma, about her amazing sister.

    "Zoe was very quiet, never told people about her condition, she never wanted people to feel sorry for her nor did she feel sorry for herself and never once moaned about her illness. At 6 years she was diagnosed with cystic fibrosis they only found out because she got Pneumonia, she spent most of the time in Scarborough hospital it was like a second home she needed constant tablets and needles. She had a box with a tube in her arm for them all to go in three injections, three times a day. At the age of 12 they found she then had a rare forum of diabetes which made her cystic Fibrosis harder, at the age of 14 she was transfer to Leeds hospital needing a liver transplant, she got a match had the transplant and made it through. She missed loads of school so pleaded to go back 2 years at school so should could do good in her GCSE and she did! She even got called names at school, a freak, a loser because she had to have a feeding tube up her nose to help her, Through all what was going she never let her illness stop her, she got a job in a care home then at the age of 17 she met someone desperately wanting a baby she asked what her chances are she then found out she has polycystic ovaries as well and was given a O.O1 % of having a child and was told if she did she would die carrying a baby, well at the age of 19 she found out she was pregnant she was so happy but so scared not for herself for the fact her baby might grow up without a Mum. Some may say she was selfish bring a baby into the world knowing she won't be there forever but I say she's amazing knowing it could have ended her life, she suffered bad so at 34 weeks they decided to give her a c.section and she saw her beautiful daughter Kaitlin a miracle! After she carried on working been a mum and even moved out to be a proper family, then last Year she had a turn for the worse she was told she was allowed a heart and lung transplant to extend her life by maybe 10 years, then she went into Leeds hospital as she normally did every month and went into a hypo and a transplant match wasn't found so Zoe went into a coma which has left her partly brain damaged, and after this she was told she could no longer have the transplant. She moved back home with Kaitlin so we could look after them both, through all this she survived and never moaned she was an amazing strong person and an amazing mum!!"
    Sadly, on the 19th of January 2013, in Saint Catherines Hospice, with her family at her bedside, Zoe, at the young age of just 23, she lost her fight against Cystic Fibrosis, leaving her beautiful young daughter without a Mother, her Mother and Father without a daughter.

    I couldnít help but be moved to tears by this tragic life Zoe had fought through, and couldnít believe so many people including myself had never heard of the terrible illness that caused it.

    Desperate to educate myself, and make myself aware, I research Cystic Fibrosis and....

    Did you know the following about Cystic Fibrosis?


    • Cystic fibrosis is an inherited disease caused by a faulty gene. This gene controls the movement of salt and water in and out of your cells, so the lungs and digestive system become clogged with mucus, making it hard to breathe and digest food. Frequently a Cystic fibrosis sufferer will feel as though they are drowning and unable to breathe.
    • Around 2.5 million people in the UK carry the faulty gene which is roughly one in 25
    • There is currently no known cure for Cystic Fibrosis
    • Every week five babies are born with Cystic Fibrosis
    • Two people die every week as a result of Cystic Fibrosis
    • When the Cystic Fibrosis Trust was founded in 1964, children were lucky to live beyond five years old with Cystic Fibrosis. Currently, around half of the sufferers of CF are expected to live past 41.
    • A cystic fibrosis sufferer will frequently have issues with lung function and are almost constantly at risk of lung infections.
    • Cystic Fibrosis sufferers are also at risk of developing brittle bones, low bone density, joint pain, arthritis and bone disease and osteoporosis.
    • In both men and women, Cystic Fibrosis is known for affecting fertility and the conception of Children. If Children are conceived, they too are considerably at risk of devloping Cystic Fibrosis in their lifetime.
    • Sufferers of Cystsic Fibrosis also have issues with digestion, due to the mucus build up attacking the pancreas, leading to imbalance of insulin, and poor digestion. This in turn leads to excessive weight loss. Also, the sufferer is at risk of developing diabetes as a result of this.
    • Additional complications in some instances include nasal polyps, sinusitis, Risk of nephrotoxicity and ototoxicity to kidneys and
      hearing.


    Sources
    http://www.cysticfibrosis.org.uk/abo...ystic-fibrosis
    http://www.cysticfibrosis.org.uk/abo...ystic-fibrosis
    http://www.cysticfibrosis.org.uk/abo...symptoms-of-cf
    http://www.cysticfibrosis.org.uk/abo...-complications

    Currently there is no known cure, the only options open to sufferers are treatments to relieve symptoms, or lung and liver transplants, so to prolong life expectancy. However, as Cystsic Fibrosis is a progressive illness, symptoms worsen drastically over time, with many additional complications, and often death.

    In Zoes case, she lost the battle against this condition, so if I can help raise awareness and funds for an eventual cure by merely shaving my head and waxing my legs, then I would do it and more. Nobody should have to live such a terrible quality of life, nor have their life ended so prematurely.

    The gloves are off; I want to join the fight to defeat Cystic Fibrosis, and to help remember Zoe and her tragic story.

    Why are you shaving your hair and waxing your legs?

    Anybody who knows me well would say I am as vain as vain gets when it comes to my hair. Never do I leave the house without spending about 20 minutes, styling it and combing it. If I am ever seen looking in a mirror, it is to check my hair, every time. Never before have I not had hair, my wife and family have even tried to talk me out of this, as they think I will look ďridiculous without hairĒ. So, if me looking ridiculous helps us beat Cystic Fibrosis, then thatís fine by me.

    The leg waxing is simply because, itís painful, and itíll probably make a lot of people laugh.

    Final note

    It would mean so much to so many people if you could sponsor me, to help fund the Cystic Fibrosis Trust, to raise awareness, research a cure, and put an end to the suffering of many people and their families. Hopefully, with your help, no more children or people need suffer as Zoe did, nor have their life taken aware so early.

    Good health is a blessing, a blessing many take for granted, and a blessing many donít receive. Letís unite and help fight this terrible condition, so others can live a blessed healthy and happy life.

    Thank you for reading and thank you if you do wish to donate, you do so by visiting my Just Giving page

    God Bless you all

    Ryan

  2. The Following 3 Users Say Thank You to lowrisk For This Useful Post:

    Anthony (29 April 2014), Renee (30 April 2014), Roulette Zeitung (29 April 2014)

  3. #2
    lowrisk is offline Private Member
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    303 views, no comments or donations

  4. #3
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    Madabout Media is offline Public Member
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    Hi Ryan,
    great cause i have just donated, hopefully others will follow suit. And don't worry i know your fond of your hair but it will grow back GOOD LUCK
    Weekly Affiliate Commission, 10% Direct, 10% Weekly & 10% Monthly Bonuses. (Got Forex, Binary or Crypto Traffic?) DM me or check out the link below.

    Team Validus

  5. #4
    Roulette Zeitung is offline Public Member
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    Quote Originally Posted by lowrisk View Post
    303 views, no comments or donations
    Only one response from Madabout Media!

    ---

    An old man went to the eye shop to collect the first eyeglasses in his life. In the moment before he left the shop, the optician hurried over to him and said: "With your new eyeglasses you have a better view on people."

    A few days later the old man reached the shop again. "I want to give my eyeglasses back", he said to the optician. "It's not worth."

    ---

    Watch some trees in in the autumn. how they loose their leaves, one by one ...
    Sometimes you see one leaf remaining ...
    Only one ...

    This one leaf of thousands represents family, love relationships, true (!) friends and people outside the private circle, doing things without getting any advantage.

    ... and that's one reason, why on 90% of all forums in the world in average only 2-5 % of all members are writing.

    Everyone knows it. Nobody speaks it out.

    Of course, you can't force people to write, as I have seen it on other places. That's a big mistake. Patience is the key for most situations in life.

    This topic can't be answered with a 2-word-post. Perhaps that's the problem.

    But not yours...

    ---

    Cystic Fibrosis is a torture for people who often contract this condition in early childhood or early adolescence. I asked my wife a few minutes ago about it. What she told me, made me very sad.

    This is the "Chatter Box" and not the "Money Chatter Box". GPWA is the leading place in casino affiliate industry. If not here, where else can we talk about it?

    A side note: Perhaps it's a good idea to add Paypal as a donation option. Many people here in Germany -as I- don't need or use credit cards.

    Leopold

  6. #5
    lowrisk is offline Private Member
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    Thank you Andy

  7. #6
    lowrisk is offline Private Member
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    You can donate with Paypal via Just giving

  8. #7
    Roulette Zeitung is offline Public Member
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    Quote Originally Posted by lowrisk View Post
    You can donate with Paypal via Just giving
    I am sorry, but I opened an account with Just Giving 10 minutes ago, and can't find any possibility to make a Paypal donation. Perhaps I am too stupid, but the only choice is the blue button "Donate with credit or debit card".



    Geo-targeted?
    I need assistance.

    Have to leave for today.

    Leopold

  9. #8
    F-L-C is offline Public Member
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    Roulette Zeitung is offline Public Member
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    Quote Originally Posted by F-L-C View Post
    Once you click donate with credit or debit card then the paypal option comes on the next screen
    Sorry, ... no!
    This is, what I see on the next screen:



    Under "Card Type" no Paypal option.
    Nowhere on the page!

    It's very inconvenient. I'll give up for today. Spent one hour without any success.

    Leopold

  12. #10
    F-L-C is offline Public Member
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    Sorry, I clicked the 'I don't want to make an account' option for just giving and then it takes you to a screen where you either select your card type or pay with paypal, thought it would be the same logged in too

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    Roulette Zeitung (30 April 2014)

  14. #11
    lowrisk is offline Private Member
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    Quote Originally Posted by Roulette Zeitung View Post
    Sorry, ... no!
    This is, what I see on the next screen:



    Under "Card Type" no Paypal option.
    Nowhere on the page!

    It's very inconvenient. I'll give up for today. Spent one hour without any success.

    Leopold
    Thank you for trying Leopold.

    I'll try and find out.

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    Roulette Zeitung (30 April 2014)

  16. #12
    lowrisk is offline Private Member
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    If any other affiliates or operators know me, and are curious as to what I may end up looking like (as was I). After an hour on photoshop, here's the result


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    Roulette Zeitung (30 April 2014)

  18. #13
    Roulette Zeitung is offline Public Member
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    Hello,

    after four cups of tea, two cakes, testing F-L-C-s friendly help tips and one more hour investigations today I found the reason, why I -as a German- was unable yesterday to donate with Paypal!

    And this information can be very helpfully for your project:
    You can only use Paypal to donate if you choose to donate in British pounds!

    So, everybody with another currency have to change first his donate into GBP (£), because Just Giving obviously will use geo-targeted suggestions (in my case it was Euro) and that's the reason, why no Paypal option occurs.

    Where there's a will there's a way. I have successfully donate your project £16 via Paypal a few minutes ago. That's the equivalent to 20 Euro.

    In this industry so many money goes around. So many people benefit from GPWA and his content.

    Perhaps it's time to ... one time ... breaking the mould, that you can reach your donation target soon!

    http://www.justgiving.com/Ryan-Sheader

    Leopold

  19. #14
    lowrisk is offline Private Member
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    Quote Originally Posted by Roulette Zeitung View Post


    Hello,

    after four cups of tea, two cakes, testing F-L-C-s friendly help tips and one more hour investigations today I found the reason, why I -as a German- was unable yesterday to donate with Paypal!

    And this information can be very helpfully for your project:
    You can only use Paypal to donate if you choose to donate in British pounds!

    So, everybody with another currency have to change first his donate into GBP (£), because Just Giving obviously will use geo-targeted suggestions (in my case it was Euro) and that's the reason, why no Paypal option occurs.

    Where there's a will there's a way. I have successfully donate your project £16 via Paypal a few minutes ago. That's the equivalent to 20 Euro.

    In this industry so many money goes around. So many people benefit from GPWA and his content.

    Perhaps it's time to ... one time ... breaking the mould, that you can reach your donation target soon!

    http://www.justgiving.com/Ryan-Sheader

    Leopold
    THank you sooooo much, this truly means a lot

  20. #15
    lowrisk is offline Private Member
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    Thank you too, to anybody else that might have donated

  21. #16
    Roulette Zeitung is offline Public Member
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    Smile

    Quote Originally Posted by lowrisk View Post
    Thank you too, to anybody else that might have donated
    Quote Originally Posted by lowrisk
    THank you sooooo much, this truly means a lot
    I wish to thank you for this opportunity.

    Quote Originally Posted by lowrisk
    If any other affiliates or operators know me, and are curious as to what I may end up looking like (as was I).
    When I close my eyes and take a deep, inspiring breath, I can envision the final result:



    Leopold

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    Good on you mate!
    onlinegamblingwebsites.com - Formally known as goodbonusguide.

  23. #18
    lowrisk is offline Private Member
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    Quote Originally Posted by Roulette Zeitung View Post
    I wish to thank you for this opportunity.


    When I close my eyes and take a deep, inspiring breath, I can envision the final result:



    Leopold
    Oh my word, I look so beautiful

  24. #19
    lowrisk is offline Private Member
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    Quote Originally Posted by baldidiot View Post
    Good on you mate!
    Cheers Matt, looks like I too will be a "bald idiot". haha

  25. #20
    Roulette Zeitung is offline Public Member
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    £316.99 = 31% target!
    The good news: 23 donations
    With one exception, nobody used the giving for self-promotion!
    My opinion is, that a giving should come from the heart and not for the purpose of domain-advertising.
    But it's only my opinion, and anyone can do as he wishes. I just noticed it.
    It would be wonderful, if some of you would help Ryan too.
    It's the middle of the month.
    You paid your rent, the heating and electricity costs.
    The refrigerator is full, and your pets are happy about tons of treats.
    You earned a lot with gambling.
    As a webmaster or as a program.
    So, open your wallet, because you can do something really good.
    For as low as the costs for a delicious plum cake you can take part.

    Leopold

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